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MIchigan Medicine Resources
Adult Congenital Heart Association (ACHA)
This organization aims to improve the quality of life and extend the lives of adults with congenital heart defects. Their site has information on different types of defects, and surgical procedures. There is also information on quality of life as well as insurance and disability concerns.
American Heart Association: Congenital Heart Defects-
This site contains sections for general information, risk factors, symptoms, diagnosis, and treatment of congenital heart defects.
Canadian Adult Congenital Heart Network
This site offers extensive information about living with and medical management of specific heart defects in adults. It also includes an adult congenital heart disease glossary.
Genetics Home Reference
This site from the National Library of Medicine provides overviews of genetic syndromes and conditions as well as in-depth explanations of genes, chromosomes, genetic counseling and links to relevant organizations.
International Society for Adult Congenital Cardiac Disease: Patient section
Frequently asked questions about living with a congenital heart disease including many illustrations of specific conditions.
National Heart, Lung, and Blood Institute (NHLBI): Congenital Heart Defects
This site provides information on types of congenital Heart Defects as well as causes, risk factors, screening, diagnosis, signs and symptoms, and treatment.
Patient Support Organizations