This clinic provides outpatient evaluation and follow-up for patients, 18 and over, with congenital heart disease.
For more information, call: 877.720.3983
This organization aims to improve the quality of life and extend the lives of adults with congenital heart defects. Their site has information on different types of defects, and surgical procedures. There is also information on quality of life as well as insurance and disability concerns.
This site offers extensive information about living with and medical management of specific heart defects in adults. It also includes an adult congenital heart disease glossary.
This site from the National Library of Medicine provides overviews of genetic syndromes and conditions as well as in-depth explanations of genes, chromosomes, genetic counseling and links to relevant organizations.
This site provides information on types of congenital Heart Defects as well as causes, risk factors, screening, diagnosis, signs and symptoms, and treatment.